I was awoken this morning at 4:45am with a call from the CUICU (Cardiac Unit ICU) doctor. Talk about a way to get your heart going in the morning. Carson was have some oozing around his heart/bandage and they were calling in the surgeon to come and suction it out because they didn't want all the pressure on his heart. Needless to say I was not able to go back to sleep. It is the worst feeling in the world to want to be there for your child but know that there is nothing you can do for him. All I could do was pray. At 6am I got another call and it was from the surgeon....again nearly had a heart attack. Anytime the doctor calls I get really worried. First thing he said was, "Mom, I have some good news, ..." (FINALLY!!!). When they were cleaning him all up the doctor really liked the way the heart was pumping and they pulled him off of ECMO machine much earlier they they were anticipating yesterday afternoon. The next 24-48 hours are still really critical. We need his heart to continue to heal. He is completely sedated so that he can just rest and work on healing his heart. His chest is still open so that they can watch for swelling, but they hope to have it closed in the next day or two.
I have read several comments from families who have already had or will be having a similar procedure. I want you to know that Carson's extra set back is rare. He just has a sensitive heart and it needs some time to recover. The doctors and nurses are amazing. Everyone is doing everything they can to make this as positive an experience as it can be.
Our sweet Carson is one of the most prayed for little boys I know. Please keep the prayers coming...they are working!