Thursday, May 17, 2012

My babies are growing too fast

Carson turned 9 months on the 1st of May.  This was a hard one for me.  Maybe because the realization of how close he is getting to his heart surgery set in.  A year always seemed so far away and realizing it is only 3 months away now scares me to death.  Maybe it is because it is just hard to see your baby growing up.  Besides from the dread of the heart surgery, he is doing great.  He is working so hard to get to sitting on his own.  We are also working on crawling on all fours and pulling up to standing.  The PT will take whatever method of mobility he wants to give us.  Right now he can move around in a circle on his stomach than roll until he gets what he wants. 

Carson is not a big fan of baby food.  He only wants to eat puffs and mum-mums.  We are working on getting him used to eating different textures and wanting to eat off of the spoon. 

Carson continues to be such a joy.  He is the happiest baby you will ever meet, but does have a funny little way of letting you know when he doesn't want to do something.  He doesn't have any words yet, but says something very similar to "hi" and likes to grunt.  At his 9 month visit Carson weighs 15lbs 10oz (1% on typical curve, 25-50% for T21) and is 26.3" long (5% on typical curve, 25% for T21).   He is doing great with fine motor and is only a little behind on gross motor.  GO Carson!

On Wednesday we went to PT and had a substitute for his normal PT (who is amazng).  It was a retired PT who now just subs when needed.  She went on and on about how well he is doing and how far ahead of the developmental chart for Down's he is.  She kept saying "you do realize how well he is doing, don't you?".  To be honest I think he is doing well, but no I really don't realize it all the time.  His regular PT is very positive, but other than her I always get told the negative things about the delays and how long it will take him to do stuff from doctors.  I hate labels.  He will do it when he does it.  It is so great to hear someone applaud you, Carson, the regular PT, and everyone for working so hard. When you have a child with special needs, or any child for that matter, you constantly question yourself (am I doing enough, too much, what therapies should I have him in, etc....).  She really praised everything we were doing and I appreciated her for realizing that and making me feel like I was doing something right. 

Kaylee turned 4 on May 12th.  We celebrated with a crazy weekend.  Both sets of grandparents were in town along with her Aunt Shanna.  She had a park playdate on Friday morning so we could celebrate with the boys, then we had her princess party on her actual birthday.  Both were so much fun.  Ha, minus the rain at the park one, but the kids didn't mind.  Kaylee got a new bike for her birthday and it is so fun to see her ride her big girl bike.  Then she had her mini Olympics for gymnastics that afternoon.  It was fun to see her show off what she has been learning the last few months.  The weekend ended with a fun Mother's Day celebration.  Kaylee continues to be such a sweet, smart, active little girl.  She is also very strong willed.  Ha, one day this will be a good thing.  Kaylee is really starting to write and read well.  This makes a teacher Mommy very happy.  Her last day of preschool was today and she will be in pre-K next year.  I can not believe it.   It is so neat to see how she is going from being a toddler to a little girl.  Sometimes I want to freeze her at this cute age.

I am truly am blessed with such a wonderful family and great friends.  I can't thank all of you enough for the prayers and support on the good and bad days.