Kidney Surgery #1

Thank you so much for all the thoughts and prayers today.  Carson did great during his procedure.  They determined the kidney is functioning and the blockage is where the ureter meets the bladder.  The muscles on the end of the ureter didn't form properly and the urine is backing up into the kidney.  We have two options to fix this.  One is a complicated surgery that can take 3-4 hours and they doctor did not recommend it because of the risk and having to keep Carson under that long with his heart.  The other surgery is a two part surgery.  First they do something called a nephrostomy tube (http://www.chop.edu/service/radiology/interventional-radiology/nephrostomy-tube.html).  Basically the doctor will remove the part of the ureter that isn't working properly and attach a tube which will drain the urine until the ureter grows and the second surgery can be done in about 12-18 months to reattach it to the bladder.  They explained to us that the tube would just drain into his diaper.  We will schedule the first surgery soon.


To be completely honest I am very overwhelmed today.  I am very happy that the kidney is functioning and they can fix the blockage, but the whole idea of 2 more surgeries just kills me.  I feel like the down syndrome is enough to deal with on its on.  I had such a hard time seeing my baby go through this today and it was minor.  I keep thinking how am I going to make it through two more kidney surgeries and a heart one.  I can't tell you how happy I will be the day we are done with all Carson's surgeries and we can really focus on his development instead of his health.


We are so blessed to have such amazing, loving, supporting friends and family.  I could not do any of this with out you all.  Thank you, Thank you for all the prayers...we feel them.  Today as we were in the waiting room we felt an overwhelming support as we read all the people praying for us on facebook, and with prayer chains.


On  a separate note we starting doing Our Children's House Baylor in Allen for therapy and love it.  They are going to evaluate him for speech...yay!!   I really want him to have oral motor therapy since speech is something most children with downs struggle with the most.